Carly Medosch is a designer, long-time friend, and is one of the wittiest people I know. Not only was she enrolled in the JMU Graphic Design program with me, we were also dorm neighbors only living a few feet from each other. Carly has Crohn’s disease and since a recent newspaper featured her story, she is now more openly expressing what it is like to be chronically ill via Twitter.
The article explains the difficulties that Carly faces as she struggles with a chronic illness but appears to be a perfectly healthy, hard working, successful (not to mention hilarious) adult. Not only does she look fine, but she doesn’t normally want to explain her situation because it can sometimes be embarrassing. Carly has additional day to day struggles on top of everything most healthy individuals have to deal with.
Sure, some of us may know someone with Crohn’s or a chronic illness but do we really KNOW what they are going through? Do we understand the pain, the embarrassment, the obstacles, the frustrations, and the fear? How can we have compassion when we don’t even really know we should?
Social media and Twitter are creating a new opportunity for those who are misunderstood to explain, giving all of us who may never know the ability to be more compassionate.
As I am typing this Carly is tweeting from the ER. I am on edge, watching to see if her account updates, seeing what she has to deal with, hoping she is okay. I realize the feelings of anxiety I am
having and the effort I am making pales in comparison to ACTUALLY being there (her amazing mom is always by her side)… but now I know. I know that it’s happening, and I sympathize, I think about the situation differently and wonder how she balances all the same things in life as me… plus Crohn’s. Carly is a superhero. Thanks to twitter, it’s not just me, but many others. It’s friends, other designers, colleagues… and in Carly’s case… Nick Dawson (@nickdawson) at Bon Secures (@BonSecoursRVA), the healthcare system that runs the hospital she is in.
You can follow Carly at @CarlyRM
For More information please visit the CCFA Website.